Linda Fabiani MSP for East Kilbride has called on Westminster to listen to recommendations put forward by MND Scotland to protect people with Motor Neuron Disease from the devastating impact of UK welfare reforms.

Linda said:

“I have raised this concern with the Department of Work and Pensions in my role on the Welfare Reform Committee.  Also, to coincide MND Scotland’s campaign highlighting the impact of current and proposed welfare reform on people with the condition, my colleague Christina McKelvie MSP raised the issue in a member’s debate in the Scottish Parliament this week.

“A diagnosis of MND is a devastating blow for families affected but they are being put through the unnecessary worries of welfare benefits assessments, questionnaires and appeals as a result of new UK changes.  It is appalling.

“MND is a terminal neurological disease, with 130 people in Scotland diagnosed each year, yet because of its poor prognosis, fewer than 400 people have the illness at any one time. The average life expectancy is 14 months.

“The last thing families need is their precious time together being spent traversing a much maligned benefits system, not to mention all the additional stress that brings with it as people worry they will not be able to support themselves financially through this traumatic time.

“The UK government’s devastating bedroom tax policy fails to take into account that people with MND have had their homes significantly adapted for their needs but regardless of that should not be forced to move from their homes.

“I fully support the MND Scotland Campaign on Welfare Reform – Time to benefit people with MND campaign and encourage others to do the same.”


Details on MND Scotland Campaign on Welfare Reform – Time to benefit people:


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